Three years ago tonight - my daughter received her first insulin shot. Not a day or even a stretch of more than a few hours has ever passed since that she hasn't needed constant needle injections/ or her pump or finger pokes. And while this saves her- and we are ever grateful- this disease has changed our lives forever.

Every day - she is strong -Still, she calculates her foods - changes her injection sites - pokes her fingers - wears her CGM- fights mood swings - highs and lows or battles some type of diabetic situation.

And yet, it's normal, our new normal. She has such a great attitude and she just does what needs to be done while doing her best to inspire others to do the same. This is a family disease- I wish I were as strong as she is.

So one night- November 22nd- I find myself just being a mom who cries for her baby. My heart remains tender and I never want it to harden. So I allow myself - this day to grieve - to imagine her without diabetes - to remember her before diabetes.

Never once am I ungrateful of what a gift she has - insulin - tools- and the will to fight but I am her mom and since she is my baby- I allow myself to be vulnerable even if just for a moment.

Tomorrow - back to "normal." Tonight I just may cry.

Picture
Kayla Perry- Great Papa Claude & Jada Perry
 


Comments

Megan
12/06/2013 12:31pm

I read your story while doing my daily read through of AOL, and couldn't help but to think about my self, and my story through Jadas! I too am a juvenile diabetic, I was diagnosed at age 4 and now being 23, I know all the difficulties, she faces, as well as you because I saw my mom go through them! I've been on a pump since I was about 11 and started the continuous monitoring system about 3 years ago (it's a blessing in its own)! You sound like you're doing a wonderful job!

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Hi Megan!
Thanks for sharing!! I know every day you face battles and I hope you always stay strong. I'm fighting for YOU too! One day there will be a CURE until then...great to hear positive stories! Don't you LOVE your CGM? As a mom, its the BEST!

Reply
12/08/2013 12:27pm

I heard about your blog through my dad Jason, who has sent an email to you about me recently. I have been a type 1 diabetic for a little over a year now, and I know to challenges that are required to overcome it. I am quite proud of Jada for staying strong while living with this disease. I know this isn't really something to be proud of, but when I was diagnosed, my blood sugar level was over 900 (just a little high, right?). I hope that your daughter continues to stay strong throughout her life, and I hope that you continue to post amazing things. Maybe we can stay in touch and combine our blogs to make something extraordinary - something to defeat the forces of Evil Pancreas ;P.

Your Friend,
Alex

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    WRITER: Kristie Perry

    About Kristie;

    I am so fortunate to be the parent of three beautiful children and a wife of nearly 16 years!  In 2010, my young  
    daughter was diagnosed as a Type 1 Diabetic.  I hope you will be blessed and encouraged
    by honest and to the point thoughts and stories from the  perspective of a
    Type 1 Diabetes parent. This isn't medical advice it's
    just my family's experiences, blogs and daily life living raising a child that has Type 1.  I'm led to be a VOICE and to  SHARE stories & ideas in efforts to communicate & reach out  to other families going through similar things with this complicated disease and to help our loved ones understand.   
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    Read Jada's Story Published by Daily Health at this LINK;

    http://www.everydayhealth.com/columns/my-health-story/a-new-life-with-type-one-diabetes-jadas-story/

    We want to help STOP all types of diabetes!

    DID YOU KNOW?
     
    26 million Americans have Diabetes  and most are Type 2.  About 3 million of those are Type 1.    
    Millions  go undiagnosed with Type 2 Diabetes plus millions are  pre-diabetic.  Those with Diabetes face complications that can  lead to death.

    Type 1 and Type 2 Diabetes are different but have common
    factors that relate to blood sugar so often we can use the same tools.  


    www.diabetes.org for more info from American Diabetes Association


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